tag:blogger.com,1999:blog-7266752364472661524.post794758070834293941..comments2014-10-14T19:19:13.122-07:00Comments on Misery Loves Company: No... I haven't forgotten about this blog quite yet. =PBeyondBraceletshttp://www.blogger.com/profile/08710728103079484956noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-7266752364472661524.post-63594611314686848442012-10-24T03:44:43.984-07:002012-10-24T03:44:43.984-07:00Sometimes I get exhausted rolling out of bed so I ...Sometimes I get exhausted rolling out of bed so I completely understand that aspect of the fibromyalgia. The energy levels are so sporadic it's insane. I'm learning that lots of people use crafts to cope with their illness and it's sort of comforting to see that I am not alone... but at the same time it's sad to know so many people do the same.<br /><br />I just take it one day at a time and sharing it makes me feel a bit more energetic. I guess because the whole 'purpose' thing behind what I do.<br /><br />Thanks so much for your comment and I hope the best for you.<br /><br />BeyondBraceletshttps://www.blogger.com/profile/08710728103079484956noreply@blogger.comtag:blogger.com,1999:blog-7266752364472661524.post-27363658045481238002012-10-24T01:37:17.671-07:002012-10-24T01:37:17.671-07:003rd attempt to respond..darn Google. I found your...3rd attempt to respond..darn Google. I found your tutorials while searching for a "purpose in life". I too have an autoimmune disease. Aside from severe fibromyalgia..the rest depends on which doctor you talk to. Lupus, MS, tested positive for Lyme, blood drawn 2 days ago to test for Myasthesia Gravis. Who knows. Pain and a host of other issues. Been on SSD for 3 years and it's depressing as all get out. I am in awe of your talent and want to thank you for giving of your time and expertise so selflessly. I truly understand how exhausting it must be as doing my laundry leaves me wiped out and hit by that mack truck. Thank you for teaching me how to make friendship bracelets..it distracts me from the pain. You are in my prayers for more good days than bad and somebody out in this great big world truly does understand. Blessings to you.Anonymoushttps://www.blogger.com/profile/00174394821844338888noreply@blogger.comtag:blogger.com,1999:blog-7266752364472661524.post-22894768974790760742012-03-27T07:35:21.284-07:002012-03-27T07:35:21.284-07:00OMG, that's some amazing news, I'm so happ...OMG, that's some amazing news, I'm so happy to read that! <br /><br />You're right, catch up on your sleep, relax, spend time with the boyfriend and it will all get even better in a few weeks :)<br /><br />Some meds can make your appetite completely disappear but it is just a matter of time till your body gets used to it, you're right, so don't worry, just take this as a little break for your stomach I know for me and most of my patients (I'm a nursing student) it normally takes three days, a week, maybe even too to get back to their normal eating routine but your appetite will soon be back, just make sure you drink your fluids!<br /><br />Thank you for sharing your experience with us, it is truly inspiring believe it or not cause you're a strong woman, many people suffer from just a flu or a broken arm and it's like the end of the world, you cope with everything with such dignity and I know you are in a difficult situation and things aren't easy at all. But there you are, sharing you art with us, your day to day, you're making it through it all so I say HURRAY for you, you go girl!<br /><br />Thank you very much for your answer, it made my made my day knowing you're doing better <3M. Söljänderhttps://www.blogger.com/profile/12406081719408173812noreply@blogger.comtag:blogger.com,1999:blog-7266752364472661524.post-68442159702149436702012-03-27T04:22:14.506-07:002012-03-27T04:22:14.506-07:00I am actually feeling okay on the medicine three d...I am actually feeling okay on the medicine three days in. I've completely lost my appetite (which isn't that good- I was only eating once a day as it was so now I'm barely picking) but it's fine. I'm sure it will be back as soon as my body adjusts to the new medicine.<br /><br />That aside... some of the pain seems to be gone. I've also been sleeping a lot better on it so that's another plus. I guess it's safe to say at this current point in time I actually feel relatively normal but even so I am still trying to take it easy. I don't want to push myself too far too fast and pay for it in the end so I'm just sort of catching up on some missed sleep and seeing if this progression continues- hopefully it will.<br /><br />Anyway... thank you for the message. It made me feel good seeing encouraging words this early in the morning. <3BeyondBraceletshttps://www.blogger.com/profile/08710728103079484956noreply@blogger.comtag:blogger.com,1999:blog-7266752364472661524.post-24867162015286788052012-03-25T17:38:32.271-07:002012-03-25T17:38:32.271-07:00Hold on miss! Take your time, no pressure, we'...Hold on miss! Take your time, no pressure, we're fine without you. I mean, I'm a newbie to the whole bracelet world so your break is giving me time to practice so that when you're back I can kind of follow up :)<br /><br />I have a chronic desease as well and was also hyperactive back in the day and now there are days when I can hardly find the courage to get out of bed. But we'll make it through this, you'll see better times are just about to come! It's all cyclical I guess, this is a bad time but it's got to end at some point and then it will all get better. From my experience the only thing that helps me is knowing that this crappy time will come to an end sooner or later, one way or another. Things just can't remain like this forever.<br /><br />You've got a diagnosis now, let's hope the meds do their magic and you'll start to feel much better really soon :)<br /><br />I won't wish you the best, I'm only just going to wish you what you do deserve: to slowly start feeling better and go back to normal (as normal as we can get, at least). <br /><br />Much courage & warm thoughts<br />xXxM. Söljänderhttps://www.blogger.com/profile/12406081719408173812noreply@blogger.com